Legislation
NATIONAL LEGISLATION
- Ministerial Decree, 28 May 1999, n. 329: regulations for the identification of chronic and disabling diseases;
- Ministerial Decree, 18 May 2001, n. 279: regulations regarding the establishment of the National Rare Diseases Network and exemption from contribution of expenses for health-care related services;
- Rare Disease National list
REGIONAL LEGISLATION
- Regional Committee Resolution, 2 March 2004. n.22 - 11870: institution of the Regional Network for the prevention, monitoring, diagnosis and follow up of Rare Diseases; this Network is composed of regional medical facilities and its Co-ordinating Center is located in Torino at the ASL TO 2;
- Regional Committee Resolution, 12April 2005, n.38 - 15326: institution of technical-specialty board, supporting Co-ordinating Center, and integration of the National Rare Disease list;
- Protocol Note of Piemonte Region, 17 November 2010, n. 33363/DB2005: definition of regional criteria for exemption from contribution of health care for Syringomyelia and Chiari Syndrome;
- Regional Commitee Resolution, 29 January 2013, n.36-5284: Rare Disease Regional Network - Guidelines for Technical Groups and Expertise Centers definition;
- Rare Disease Regional List
INTERREGIONAL EXPERTISE CENTER FOR SYRINGOMYELIA AND CHIARI SYNDROME – CRESSC
- Regional Commitee Resolution, 29 March 2010, n. 95-13748: Care path for Syringomyelia-Syringobulbia and Chiari Syndrome, and identification, for Piemonte and Valle d'Aosta Region, of Interregional Expertise Center for Syringomyelia and Chiari Syndrome (CRESSC) at the CTO Hospital, Torino, Italy;
- Attachment A - R.C.R., 29 March 2010, n. 95-13748: Definition of Regional Network, role and characteristics of the Expertise Center for patients with Syringomyelia and Chiari Syndrome.
- D.A., 18 November 2015, n.1108/2015: Multidisciplinary Group of AOU Città della Salute e della Scienza di Torino for integrated management of the person affected by Syringomyelia and/or Chiari Syndrome referred to CRESSC
