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CONSENSUS CONFERENCE ON CHIARI MALFORMATION & SYRINGOMYELIA, NOVEMBER 11-12-13 2019

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FOURTH NATIONAL THEORICAL-PRACTICAL UPDATE COURSE: “SYRINGOMYELIA AND CHIARI: ADVANCES ON DIAGNOSIS AND THERAPY" 2019 6-7 JUNE IN TURIN 

 

 

 

 

Program

 

 

 

 

 

 

 

 

 

 

 

SAVE THE DATE: XII RARE DISEASE DAY 2019 28  FEBRUARY

SYRINGOMYELIA-CHIARI 2018 INTERNATIONAL SYMPOSIUM

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SAVE THE DATE: XI RARE DISEASE DAY 2018 28  FEBRUARY

INTERNATIONAL CONFERENCE ON SYRINGOMYELIA AND CHIARI MALFORMATION IN PARIS NOVEMBER

                                                                                              

 

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X RARE DISEASE DAY 2017 28  FEBRUARY IN TORINO:

 

For download of all pictures, log into Reserved Area (click here to register).

 

 

 

 

 

 

 

 

 

OFFICIAL RARE DISEASE DAY 2017 VIDEO

 

INTERREGIONAL CENTRE OF EXPERTISE FOR SYRINGOMYELIA AND CHIARI SYNDROME

WEB PLATFORM CRESSC – NEW SERVICES

In the new web platform you can find useful information about Syringomyelia and Chiari Syndrome, access further services dedicated to patients and clinicians, such as:

- Informative Material about pathologies (documents/download)
- Events and Communications
- Dedicated Sections to the Community

 

For further information and events consult the various Sections of the website.

For dedicated services, log into Reserved Area (click here to register)

DIAGNOSTIC-THERAUPETIC-ASSISTENTIAL PATH

Adult patients with suspected Chiari Malformation and/or Syringomyelia can access the CRESSC and the relative diagnostic-theraupetic-assistential path (DTAP, click here to download) through a first neurological evaluation in the outpatients' department of CRESSC.

CTO Hospital, ground floor, hall C, Via Zuretti, 29, Torino, Italy

For booking and offered services, consult the page "Make an appointment" in the SERVICES Section or turn to the Service Department Secretary CRESSC.

 

SYRINGOMYELIA AND CHIARI SYNDROME: RARE DISEASES, BUT NOT TOO, COMPARISON BETWEEN NEUROLOGY AND LEGAL MEDICINE 

Rare Disease Commission of Medical Order of Turin (OMCeO Torino)

 

http://www.torinomedica.org

 

13th May 2016
Villa Raby – C.so Francia 8 – Torino

Registration Form

Program

 

 

 

 

CHARITY CONCERT IN SUPPORT OF ACTION INTO RESEARCH ON SYRINGOMYELIA

A large audience met at the event, demonstrating sensitivity of people in support of Action into Research on Syringomyelia.

 

Photos from the event are available in the GALLERY section; for download of all pictures, log into Reserved Area (click here to register).

 

 

 

                                                                                                                                                                                     

 

 

INTERNATIONAL RARE DISEASE DAY

The International Rare Disease Day, promoted by EURORDIS, is one of the most important events for people affected by rare diseases, their relatives, and for caregiveres and health workers.

The Day theme on the 28th of February 2015, eighth edition of the event, was a tribute to patients and caregivers, with the slogan “Living with a Rare Disease. Day by day, hand in hand”.

 

 

The CRESSC, during the Internationa Rare Diseases Day 2015, has organized a meeting with younger patients to participate to the initiative proposed by EURORDIS, which invited to diffuse the solidarity event through a picture.

For download of all pictures, log into Reserved Area (click here to register).

                       

 

FIRST NATIONAL CONVENTION: ASSISTENTIAL NEEDS AND SUSTAINIBILITY IN RARE DISEASES

 

On the 10th of May 2014 at the Villa Raby in Turin the First National Convention: Assistential Needs and Sustainability in Rare Diseases has been carried out.

The event, promoted by the Rare Diseases Commission of the Doctors’ Order of Turin (coordinated by Dr. Palma Ciaramitaro), has included more than 150 doctors, pediatricians, pharmacists, specialists with the purpose of promoting culture and knowledge of Rare Diseases

 

The multimedia data are available; log into Reserved Area (click here to register).

 

 

 

 

SECOND NATIONAL THEORICAL-PRACTICAL UPDATE COURSE: “SYRINGOMYELIA: FOCUS ON DIAGNOSIS AND THERAPY"

After the positive experience of 2012 with the First Course, on the 28th of November 2013, the Second National Theorical-Practical Update Course about Syringomyelia and Chiari Malformation has been carried out.

Part of Course has been dedicated to video-sessions and the interactive participation in work groups.

 

The multimedia data are available; log into Reserved Area (click here to register).

 

 

 

 

 

 

RARE DISEASE DAY 2012: CTO MEETS CITIZENS

 

On the 27th of February 2012 at the CTO of Torino, during the International Rare Diseases Day, the Meeting among CTO and Citizens: Focus on Interstitial Cystitis/BPS, Siringomielia and Chiari Malformation, Neurofibromatosis has been carried out.

 

The multimedia data of Meeting are available; log into Reserved Area (click here to register).

 

 

 

 

 

 

 

 

FIRST NATIONAL THEORICAL-PRACTICAL UPDATE COURSE: “SIRINGOMIELIA E SINDROME DI CHIARI: UP-TO-DATE ON DIAGNOSIS AND THERAPY"

On the 18th of January 2012 at the CTO of Turin the First National Theorical-Practical Update Course about Syringomyelia and Chiari Malformation has been carried out.

Primary purpose has been the presentation of diagnostic-therapeutic Recommendations realized by the  “Syringomyelia-syringobulbia and Chiari Malformation” Interregional Consortium, Rare Diseases Interregional Network of Piemonte and Valle D’Aosta, and in collaboration with the patients’ Association.

The Dissemination of Recommendations (integration of Syringomyelia and Chiari Malformation Assistential Path - D.G.R. 95-13748, 29/03/2010), proposes to favour a standard approach to diagnosis and therapies of such pathologies, for which there aren’t codified Guidelines for the time being.

The multimedia data are available; log into Reserved Area (click here to register).

 

 

 

RARE DISEASES UPDATE COURSE: INTERREGIONAL NETWORK OF PIEMONTE AND VALLE D’AOSTA FOR RARE DISEASES AND CTO HOSPITAL EXPERIENCE

On the 25th of February 2011 at the CTO of Turin the Rare Diseases Update Course:  Interregional Network of Piemonte and Valle d'Aosta for Rare Disease and CTO Hospital Experience" has been carried out

The multimedia data are available; log into Reserved Area (click here to register).

 

 

 

 

 

 

 

 

 

 

AGAINST SIRINGOMIELIA – TGR LEONARDO

In 2010 TGR LEONARDO faced the “Rare Diseases” theme interviewing specialists from the CTO Hospital, Torino, Italy and the AISMAC (Italian Association Syringomielia and Arnold Chiari) President.